The team of experts at the Collaborative CDH (Congenital Diaphragmatic Hernia) Care Program at SSM Health Cardinal Glennon Children’s Hospital provides those with CDH seamless care from prenatal diagnosis through childhood and beyond.
Families first meet with the team of experts from the Collaborative CDH Care Program while their baby is still in the womb, during their initial appointments at the SSM Health St. Louis Fetal Care Institute.
CDH is a complicated condition, and its impact on patients can vary greatly. These patients often need ongoing care throughout their development. The experienced team of medical specialists at the Collaborative CDH Care Program at SSM Health Cardinal Glennon Children's Hospital and SSM Health St. Mary’s Hospital - St. Louis work with families from the initial prenatal diagnosis and delivery through the surgeries and care needed after delivery and into childhood.
This continual support by the same team of experts provides patients with the optimal level of care to support their overall well-being as they grow and develop.
Families can plan to meet with:
Maternal-fetal medicine specialists who monitor the baby and provide state-of-the-art prenatal care
Neonatologists who provide care at the time of delivery and during the first months of life
Pediatric surgeons who perform any necessary CDH repair surgeries and other related procedures
A member of the Collaborative CDH Care Program who will assist in coordinating care throughout the patient’s time at SSM Health Cardinal Glennon
A medical support team that includes nurses, social workers, genetic counselors and other medical experts to assist the family throughout the process
During the prenatal stage, the baby and mom are closely monitored and a delivery plan is developed. After delivery, surgeons and neonatologists will work to develop a plan that is best for your baby.
During the baby’s stay in the NICU, a Collaborative CDH Care Program coordinator will work closely with the family, neonatologists, pediatric surgery team and other specialists to provide an unparalleled level of ongoing care.
After the baby is discharged from SSM Health Cardinal Glennon Children's Hospital, a Collaborative CDH Care Program coordinator will assist with scheduling follow-up clinic appointments and coordinate future medical procedures or surgeries that may be needed. Follow-up appointments will include involvement with SSM Health Cardinal Glennon’s Nursery Follow-up Program. This team of medical professionals, which includes a pediatric neurologist, a pediatric nurse practitioner, a psychologist, a speech therapist, a physical therapist, a social worker, a nutritionist, a pediatric ophthalmologist and an audiologist assists in the transition home from the NICU. They also provide developmental testing from birth to 24-months, and work with the family’s pediatrician as your child grows and develops.
The Collaborative CDH Care Program coordinator also serves as a resource for families who have questions or need assistance with the care of their child as they develop. This continuum of care ensures that the specialists working with our CDH patients know the intricacies of each child’s unique medical situation and can provide the best level of care.
Ready to learn more about CDH, such as how it is detected and how it is treated at Cardinal Glennon Children's Hospital? Get the details here.